Sunday, March 29, 2009

The Face--update


Some of you know that the idea for THE FACE came to me after I watched a Discovery-Health Channel special called "Born Without a Face"--it's the true story of Juliana Wetmore.

Well, the other day I found a follow up program on the same channel: "Born Without a Face: Five Years Later." I watched, and saw that Juliana is now five years old, very bright, mostly happy, and quite adept at sign language. Her parents' love and care is still very precious to behold.

Though Julianna's face is still a long way from what most people would call "normal," I was interested to hear that her parents are wondering when they should call it quits. This little girl has had 29 painful surgeries, and I know there will come a point when they don't want to put their child through any more suffering. When will enough be enough? Juliana still eats through a stomach tube and breathes through a trach. At some point, her parents will say, "That's enough for now," and everyone will learn to live with whatever disabilities still exist at that point.

I found this especially interesting, because in my novel THE FACE, I had Sarah's caregiver come to the same conclusion . . . at one point, she decided that Sarah could live with a face that was far from being structurally perfect. Sarah was able to eat, breath, and hear with a cochlear implant . . .

I don't know what the future holds for this dear family, but when you watch Juliana, when you look past the face and see the brave spirit shining within, you can't help but cheer her and her parents on. I'll be remembering them in my prayers.

~~Angie

6 comments:

Mocha with Linda said...

Wow. I remember reading about them when you did the BOM for THE FACE. I can't even begin to fathom the journey they are on.

Smilingsal said...

What a tough decision to make.

A Cottage Rose said...

I recently purchased "The Face" from the Kindle store and loved it. Next purchase: "She's in a Better Place."

Thank you again for your work.

With love,
Angie

Linda G said...

I just finished "The Face". It made my wait in the airport and the flight go by very quickly.
I am so glad that I did not peek ahead, since once again Angie did the unexpected.

Does the family of the little girl have insurance that is covering the costs of all the surgeries?

jan said...

i am reading "the face" as we speak. it is wonderful!
jan

Angela said...

I remember the first special saying that since Juliana's father is in the military, all her medical expenses are covered. She has surgeries in VA hospitals, I think.

Angie